OMG I&apos;m sat here in tears at the relief of finding a webpage that actually understands and explains what I have been going through for the last year and a half. I was admitted to hospital in May of last year with " a stroke" after I went completely numb down my left side with face droop, and I could&apos;nt remember my name, D.O.B etc which after having a CT scan the Drs told myself and my whole family that I had had a Lacunar Stroke. 4 days after my CT I had an MRI bearing in mind all this time I had been laying helpless in a hospital bed having to be hoisted to get out of bed as I still could&apos;nt move my left side, I was wheeled down to physio and told to get out of the chair and walk and man handled round the ward. I was terrified and in tears but the physio just said see the consultant. Later that day the cons. came and said they could not see any evidence of a stroke go home and get my GP to send me to a psychologist.
Since then I have battled with every professional I could get to see to demand answers as I was just ignored after coming out of the hospital, no follow up, no explanation. Finally after telling my Gp I was suicidal he sent me to a neurologist who sat me down and calmly and sympathetically explained the diagnosis of Functional symptoms. It was a shock but eventually I understood what he was saying the only problem left is my body still thinks I had a stroke and my left hand is still pretty weak and I still walk with a limp but the worse thing is my memory as I still forget things and words and can stutter a bit sometimes and it has left me with IBS. At least I&apos;m not dying or seriously ill but now every time I do feel poorly I tend to put of going to my GP as I feel everytime I go I am being thought of as time wasting. Thank you again for making me feel I am not alone and going mad :)
I have been searching for answers for 7 and a half years. I have only just found your website and the more I read the more I cried. Finally something I can relate too. My symptoms started with a buzzing sensation in my lower legs. It slowly progressed up my body until I have the sensation all over, 24--7. There is nothing I can take or do to get any relief, my muscles are extremely tender. I can physically do most things, so to doctors, family and friends there&apos;s nothing wrong with me. (all in my head). The first 3 years I was very suicidal. I have seen 3 neurologists, been to 6 different GPs, had MRIs, CAT scans, tried accupuncture, been to Naturopath. Spent literally thousands of $$$ of specialists to no avail. I got to the stage where I knew I had to push through the discomfort and pain, keep smiley and generally pretend to all nothing was wrong. But sometimes I hit a brick wall and fall into a deep depressed state, eventually pulling myself out of it and go back smiling!Tomorrow I have a doctors appt where I will attempt to get him to perhaps read some of this web site if not all and hopefully .....hopefully we can work out what the next move will be. Thank you so much
Well I&apos;ve just been diagnosed. I truly hope after being told 40 years ago I have multiple sclerosis that I can get my life back. Thanks to this page and stories there is light at the end of the tunnel
I have been diagnosed with FND and like many others have trouble coming to terms with everything that goes with it! Did a &apos;Google&apos; search and came up with your site, I am finding it extremely interesting, reading real letters from other sufferers is very helpful especially the first letter. I cannot read it all in one go but will re-visit, brilliant site, very helpful
EDITORS note: this kind of experience after surgery is quite common. David I hope that this website helps you see that, leaving aside your own problems, that functional neurological symptoms are a genuine problem and not &apos;all in the head&apos; (ie not imagined)
any tips for those family/friends/partners who are trying to live with someone who has this? and who says they don&apos;t know who you are or what the words they are using actually mean? Is anyone else finding that a partner with this condition is completely self absorbed, unable to empathise or be interested in their other half in any meaningful way? I am in a situation where the person seems prepared to make any excuse in the book to avoid addressing this - is this a normal &apos;start&apos; to dealing with this? Yours, dazed, confused and jolly sad
OMG I&apos;m sat here in tears at the relief of finding a webpage that actually understands and explains what I have been going through for the last year and a half. I was admitted to hospital in May of last year with " a stroke" after I went completely numb down my left side with face droop, and I could&apos;nt remember my name, D.O.B etc which after having a CT scan the Drs told myself and my whole family that I had had a Lacunar Stroke. 4 days after my CT I had an MRI bearing in mind all this time I had been laying helpless in a hospital bed having to be hoisted to get out of bed as I still could&apos;nt move my left side, I was wheeled down to physio and told to get out of the chair and walk and man handled round the ward. I was terrified and in tears but the physio just said see the consultant. Later that day the cons. came and said they could not see any evidence of a stroke go home and get my GP to send me to a psychologist.
Since then I have battled with every professional I could get to see to demand answers as I was just ignored after coming out of the hospital, no follow up, no explanation. Finally after telling my Gp I was suicidal he sent me to a neurologist who sat me down and calmly and sympathetically explained the diagnosis of Functional symptoms. It was a shock but eventually I understood what he was saying the only problem left is my body still thinks I had a stroke and my left hand is still pretty weak and I still walk with a limp but the worse thing is my memory as I still forget things and words and can stutter a bit sometimes and it has left me with IBS. At least I&apos;m not dying or seriously ill but now every time I do feel poorly I tend to put of going to my GP as I feel everytime I go I am being thought of as time wasting. Thank you again for making me feel I am not alone and going mad :)
I have been searching for answers for 7 and a half years. I have only just found your website and the more I read the more I cried. Finally something I can relate too. My symptoms started with a buzzing sensation in my lower legs. It slowly progressed up my body until I have the sensation all over, 24--7. There is nothing I can take or do to get any relief, my muscles are extre
mely tender. I can physically do most things, so to doctors, family and friends there&apos;s nothing wrong with me. (all in my head). The first 3 years I was very suicidal. I have seen 3 neurologists, been to 6 different GPs, had MRIs, CAT scans, tried accupuncture, been to Naturopath. Spent literally thousands of $$$ of specialists to no avail. I got to the stage where I knew I had to push through the discomfort and pain, keep smiley and generally pretend to all nothing was wrong. But sometimes I hit a brick wall and fall into a deep depressed state, eventually pulling myself out of it and go back smiling!Tomorrow I have a doctors appt where I will attempt to get him to perhaps read some of this web site if not all and hopefully .....hopefully we can work out what the next move will be. Thank you so much
Well I&apos;ve just been diagnosed. I truly hope after being told 40 years ago I have multiple sclerosis that I can get my life back. Thanks to this page and stories there is light at the end of the tunnel
I have been diagnosed with FND and like many others have trouble coming to terms with everything that goes with it! Did a &apos;Google&apos; search and came up with your site, I am finding it extremely interesting, reading real letters from other sufferers is very helpful especially the first letter. I cannot read it all in one go but will re-visit, brilliant site, very helpful
EDITORS note: this kind of experience after surgery is quite common. David I hope that this website helps you see that, leaving aside your own problems, that functional neurological symptoms are a genuine problem and not &apos;all in the head&apos; (ie not imagined)
any tips for those family/friends/partners who are trying to live with someone who has this? and who says they don&apos;t know who you are or what the words they are using actually mean? Is anyone else finding that a partner with this condition is completely self absorbed, unable to empathise or be interested in their other half in any meaningful way? I am in a situation where the person seems prepared to make any excuse in the book to avoid addressing this - is this a normal &apos;start&apos; to dealing with this? Yours, dazed, confused and jolly sad